Standing Voice has worked on Ukerewe Island for more than a decade.
Deep in the heart of Tanzania’s Lake Victoria, the island is in many ways the birthplace of our organisation: the location for much of my documentary, In the Shadow of the Sun, and a hub for Standing Voice's frontline services in Skin Cancer Prevention, Vision Care, and Education.
Perhaps more than anywhere else in Tanzania, or Africa, Ukerewe has been the target of sensationalist press around this issue: mystified by the media as a ‘sanctuary’ for people with albinism, a safe haven away from the discrimination of the mainland, where security can be found in numbers.
The reality is that Ukerewe has a deep and long history of discrimination against people with albinism. When I first arrived in 2006 I found unfathomable stigma: people abused and abandoned by their families, locked out of employment, dying of skin cancer. Some were forced to eat away from others, with separate bowls and utensils.
To bridge this divide and build a platform for reintegration, Standing Voice established the Umoja Training Centre in 2016: a community training facility providing skills development and economic enrichment to people with albinism and their friends, families, and wider community members on Ukerewe; a second chance for so many people with albinism who lost out on education in childhood.
In June, Standing Voice launched its inaugural Summer Skills Workshop: an integrated training programme, based at the Umoja Training Centre, helping the community to develop skills and pursue income-generating opportunities and pathways of professional development. Over six days, we brought together renowned artists, actors, researchers, broadcasters, photographers, tailors and musicians, and connected these professionals to people with albinism and their peers on Ukerewe.
85 people received specialist training, and hundreds more attended our International Albinism Awareness Day celebrations on June 13. All workshop participants received one-on-one health consultations too.
Because of these workshops, six brand new income-generating and community groups have been established on Ukerewe Island. To read about each, you can follow the links below, or click the boxes in our newsletter: