TAG: albinism

Standing Voice promotes the social inclusion and wellbeing of people with albinism in Tanzania. This is our News.

Navigation

The Tunajitambua Tailors

For some, clothes are accessories; on Ukerewe, they’re a lifeline In Tanzania, it is not just people with albinism who face stigma, but their families and loved ones too. When a baby with albinism is born, the mother is almost universally ‘blamed’. Fathers regularly walk out and never return: the child’s skin colour at best a sign of adultery; at worst, a curse from God. In some cases, fathers have been direct perpetrators of…

Ukerewe's Young Reporters amplify the voices of their community

A faint crackle emanates from the radio. After a few seconds, the static clears to pick up the sound of voices. They belong to the Ukerewe Young Reporters, a youth radio group established by Standing Voice in 2016. The group meet monthly to record and broadcast their stories, and reconvened in June to document the inaugural Summer Skills Workshop and International Albinism Awareness Day celebrations at the Umoja Training Centre. The Ukerewe Young Reporters’ Group was…

Artist Annie-Marie Akussah embarks on an journey with the people of Ukerewe

I first heard of Standing Voice after creating a painting of a boy with albinism, inspired by Eric Nehr’s striking photography series featuring people with the condition in Burundi. I began researching the superstitious killing of people with albinism in East Africa and found the film In the Shadow of the Sun, which was directed by Harry Freeland, the founder of Standing Voice. I felt incredibly moved by the lives of those portrayed in the…

Summer Skills Workshop 2017

Harry Freeland reflects on the events of an incredible fortnight on Ukrewe Island Standing Voice has worked on Ukerewe Island for more than a decade. Deep in the heart of Tanzania’s Lake Victoria, the island is in many ways the birthplace of our organisation: the location for much of my documentary, In the Shadow of the Sun, and a hub for Standing Voice's frontline services in Skin Cancer Prevention, Vision Care, and Education. Perhaps more…

Building interactive understanding of albinism in Tanzania

Over the last two years, Standing Voice has led a groundbreaking project to transform perceptions of albinism in communities across Tanzania. Executed with the support of the Wellcome Trust, the project has brought together scientists, artists, and advocates from across the UK and Africa to showcase the science of albinism in a socially relatable way. The project began in earnest in June 2016 in Bagamoyo, a small fishing town on the Tanzanian coast. Our core team…