Standing Voice promotes the social inclusion and wellbeing of people with albinism in Tanzania. This is our News.

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Joint Strategy Workshop

In December, Standing Voice facilitated a joint strategy workshop on Ukerewe Island, in Tanzania’s Lake Victoria. This workshop was the latest in a series of stakeholder consultations conducted throughout 2016 by Standing Voice in partnership with the World Bank and other partners. The purpose of these consultations is to perform a comprehensive needs assessment for persons with albinism in Tanzania by engaging a diversity of stakeholders in dialogue. This process began with national-level consultations through…

New Horizons: Malawi

This December, Standing Voice travelled to Malawi for the international launch of our Skin Cancer Prevention Programme! For the first time our life-saving clinics were delivered outside Tanzania. Before the clinic our team met with authorities from the Malawian Ministry of Health. We advocated at the national level, with Mr Rex Cheonga, the Director of Rehabilitation; and at the district level, with Dr William Peno, the Mangochi District Health Officer. Both expressed their deepest support for…

Creative Advocacy With The Wellcome Trust

This year, Standing Voice led an exciting advocacy project designed to spark conversation in Tanzanian communities about the genetic origins of albinism. Funded by the Wellcome Trust, the project aims to bring together scientists and artists from across the UK and Africa to showcase the science of albinism in a socially relatable way. In November, the project reached its climax with a series of interactive performances on Ukerewe Island in Lake Victoria, Tanzania. Musicians, actors, dancers…

United Nations Think Tank: Nairobi

November saw the first official meeting of the United Nations Think Tank Task Force on Albinism, an elected body born out of ‘Action on Albinism in Africa’, a consultative forum held in Dar es Salaam in June 2016. The UN Think Tank comprises elected experts and specialists from across Africa and the globe, whose responsibility is to develop, refine and eventually implement the recommendations devised in earlier conferences with broader audiences. We feel very lucky to…

Disability Rights Conference and United Nations High Level Meeting

At the end of November we were delighted to attend this year’s Disability Rights Conference in Pretoria, with the theme of ‘Advancing the Rights of Persons with Albinism in Africa: A Call for Action’. Coordinated by Open Society Foundations and the Centre for Human Rights (University of Pretoria), the conference highlighted a number of critical themes surrounding the issue of albinism in Africa. These included the use of language and terminology, and the deployment of…